Friday, October 24, 2008

The Outback and The Sea



'The cradle is soft and warm,
couldn't do me no harm.'


'Into Temptation'
Crowded House (as performed by Jimmy Little)

Nivea, sea salt, coffee and come. Wry faces with soil for blush, embryonic with some kind of pathological softening. Oil and diesel fumes coat my hair, and gears crunch with a rush of dust trailing in reverse like hot ochre rain. Which is foolish, because it never rains.

There's no room for avarice for thousands of miles and I can see for miles and miles.

Bush kava and mothers milk. Bulls with clotted horns and loose balls fossick 'round the fence with faces like forked cheese; brindle hides like Moquette. I'm swimming, watching them from the water, trying to see and hear their secrets. Dust rises around raw-boned flanks, smudging the air while hooves brand the ground. They don't know I'm there until I paddle to the rim of the water, sink under and push with my legs from the wall of the pool. I'm Superman, flying as I lean into a curve - arms out, slicing through the water. I jump up and they stop chewing on cud and snorting dirt, or drop their heads down from scratching their snouts in the trees.

Bovine skulls and necks twist my way. They're not bothered by the blonde bobbing in the water with a stupid smile on her face - a parting of the lips and vacant eyes coming from a place that I can't forget, nor remember.

Could just be because I'm out of the city in a little blue lake, shaded by a eucalypt sprouting sixty feet above my head.

Could be because if I turn my head I can see forty-eight rose bushes and a weeping willow which truly weeps. Its branches seem to droop with such sorrow. The leaves hangs low, touching the ground and the block of uncut granite where Meagan's ashes lay.

Could even be because outside the fence it's just brown and yuck and bull dust and rotting kangaroo carcasses, but if I bend my neck back far enough there is the big blue beyond.

You don't get that in the city.

You don't get that at the sea.

The ocean was nature’s version of myself. It would churn, then lull on the shore; churn and lull on the shore again. Flashing and flushing, not knowing where to go, what kind of mood to swing, where to hover or how to throw a punch, another tide would come; one more whitewash.

The sea would interrupt my confusion. It would unfurl, flowing out into the brown froth of a waning ocean wave. It was the only place I felt truly nurtured; a place that felt all of my sorrow with every crash of an angry wave. Except I wasn't angry anymore.

It would salve on the shore with ripples of understanding. The sand was a cocoon and the wind cruel with me believing that I deserved its stinging slaps. It was the only place where I could be me, without question, reservation, provocation or the undeserved care that would smother me like a blanket freshly drawn from the water to be spread over my skin.

It was a place where I was well and centred, a place where I could just be, for fleeting moments of joy and reconnaissance disarmed the siege between this disease and myself, if just for a little while. Still does.

You don't get that in the city.

You can't get that in the city.

*Endnote: the first photograph was taken at my folks place in Mooloolaba, while the second was taken in July at 'Cumberland' under the Weeping Willow. You can see the granite boulder and it even has a bench you can perch on to tell Meag's what's been happening

When a friend dies

12.2.04 11.20-11.25am Prince Charles Hospital

Such a tapestry of variance and quiet discord. Me in one room; all pink and angry and alive, then a friend in another; blue and angry and on the cusp of not being here at all. Grew up with her. We misbehaved together, grieved together, got drunk together. She, always the healthier of the two (and the four), now clamouring for breath, rasping and rattling on a morphine cloud not really taking her anywhere at all, while I sit and breathe at will. Unyielding to dark passages with the taste of bitter cheese in my mouth, a full belly and a heaving chest of air, I press my palm on my chest.

Why be it this way?

Monday, October 20, 2008

If you go down to the (public) hospital today ...

Public hospitals. Places of never ending intrigue and WTF was that? One such WTF is a posse of cigarette smoking patients in DVT prevention stockings in hospital for either (or several) of the following:

> Diabetic induced amputation of a major limb
> Alcohol induced liver failure (they'll also have their bottle of Jack with them - no joke)
> Obesity related Diabetes
> Obesity related heart condition which has required open heart surgery and a double/triple bypass
> Cancer

Within this vortex are all manner of people who seem to be unable to read or lack the ability to acknowledge signage because they're having a toke right next to the 'No Smoking' sign, or the perennial favourite belonging to Queensland Health - 'We don't smoke here anymore.' Right. So where do you smoke now, you stupid twats? What kind of fuckery is this? I've asked these people, 'Can't you read?' which leads to engaging in a dialogue or an all out argument over the state of the health system and how I don't give a flying fuck if they're addicted to nicotine or how smoking post-surgery increases the chance of a DVT. I've never ended one of these 'debates' on a positive note and have been verbally abused and threatened physically, which is one definition of funny. 'So cancer stick dick, you're going to rise like Lady Lazarus out of your wheelchair while attached to a drip feeding you expensive anti-biotics and chase me down - ooh, I'm fucking petrified!' I'm sounding a little Maddox (www.maddox.xmission.com -check it). Don't get me wrong - I'm a lover, not a fighter and I've been told that I'm one of the most calm and rational people around. I don't get rattled very often, but when I pop my top, you don't want to be there.

So I went out to Charlies (The Prince Charles Hospital) this morning to have an ultrasound on my subclavian and axillary for my DVT or SE. For non-medical people, that's an ultrasound - and a whole lotta gel - of my collarbone, armpit, chest and arm for a deep vein thrombosis or spontaneous emboli after being on the receiving end of a stuffed up PICC line.

Yes, everyone should have one - a thrombus, that is. I was in the ultrasound suite for nearly an hour. Suite?. Why yes. But not just any suite. It had a bed, probes and gel, a babe in a uniform and dimmer lights. Did I mention the cameras and gloves? Oh yeah ... ultrasound suites ---> the latest home for swingers.

Swingers, white supremacists - they're all the same. In the waiting room was a man who had done his fair share for his country. From what I could tell, he was a war veteran. Without being age specific, I guesstimated that he would have served in Vietnam. His arms were dipped in skank, I mean, ink (deliberate slip up to share with you one of my favourite turns of phrase 'dipped in skank'. I thought it slutted, I mean, slotted in beautifully. Yeppers people, I'm on fire.)

Anyway, I thought it a *little* ironic that this man was wearing a t-shirt and hat bearing the Australian flag (with some little ditty about immigrants) and how the shirt and hat would have been made (and possibly designed) in China. He's been conscripted to Vietnam and served his country - a war he probably knew nothing about when he was called up, and unfortunately would know everything about post tour of duty. Also, the ink used on his tattoos was in all likelihood 'Indian ink' or 'Chinese ink'. I thought it sad that his passion for patriotism had somehow failed him. He could very well be a jaded war vet and I have to say that I can't blame him.

Post swingin' ultrasound, I hotfooted it (read: lead footed it) to the Royal (that's the Royal Brisbane and Women's Hospital), and for once I wasn't going there to see the broken cunt or digit cancer doctors. It was to see my dashing ENT surgeon. It's always nice to drift off in a haze of Propafol looking at eye candy while reciting poetry from your teen angst era, or just generally talking crap. This is because there's nothing worse than drifting off into the slumberland of general anesthesia when you're looking at a 'handsome' woman or a scary looking (usually in the form of a hairy backed male) doctor. That is, unless you die and the last thing you see are the former and/or the latter.

The last major surgery I had in January, I drifted off to some really pissed off anesthetists, because they had such trouble cannulating me. Well, shit - I had told them at the pre-admission clinic that I was practically impossible to get venous access without a central line or a cut down. Google 'venous cut down' - it's messy. Telling off people with lots of letters after their names (MBBS FRACS) is something I do well. I also excel at screaming down clusters of men (who have seemingly endless reams of very important looking certificates with the afore mentioned letters trailing after their names) in front of their peers and young charges. It's becoming more of a hobby than a habit or borne out of necessity. This is the only time I get angry - when someone stuffs up. I have the right to curse and shout because it's my life they're dealing with. I'm not an illness. I'm not just a body. Having ranted about the bad eggs, most of the doctors I deal with are magicians for all the right reasons. Just keep the clowns away from me ...

My advice is always choose an uber-gorgeous doctor, say for example, Peter Hotkins, I mean, Hopkins, and if you die on the table, then at least the journey has been worth it. I'm not happy if I'm sedated before I see Hotkins. I have to see Hotkins. Truth be known, I can honestly say that if he was the last person I sucked face with, I mean, looked at before I died, I would die a satisfied woman with a satisfied mind. He holds the line, stays the course and has saved my life. Considering the issues I have with death due to the monumental fuck up of last November's cunt cancer surgery, if I could have Propafol and Pete on a plate for my last supper, then that would be my order.

For some time it has been clear to me that I know too much about things I really shouldn't know about such as: sedatives, anti-biotics, anti-coagulants, anti-rejection drugs (that's a whole lotta 'anti'), cannulation techniques, how to stick a needle in my chest, how to cannulate a fellow human being (on the first go, thank you very much), finding a vein for a phlebotomist, automatically de-bra-ing/free boobing for x-rays, telling anaesthetists that I'll need a payload of drugs to get me even slightly drowsy and so many other things that aren't coming to me at the end of a long day bound in the red tape of hospitals.

It's sad when you know the 'universal precautions' by the time you're ten years old (gloves, goggles, gown, surgical hand washing etc.) but that was my reality. Still is. I'd never 'un-C.F' myself. I really wouldn't change a thing - apart from scoring a syringeful of Propafol so I can rape Hotkins*.

I feel safer in a public hospital than in a private one. It never ceases to amaze me how people are so deluded when they presume that private hospitals are the better of the two. A private hospital essentially killed my Uncle. If he had been at Charlies, the leading heart hospital in Queensland, I suspect that Garth would still be sailing his yacht 'Kaos' and would be a proud grandfather. The universe could not have taken a more beautiful person, and while this happened well before I hit my teens, it still stings. It will always sting. Stuff like that sticks and the grief only fades ever so slightly over time. So my message is this - don't assume that any private hospital is better than a public one, because that's just an elitist load of crap. Public hospitals are a freak show, and for that alone, I love them.

And if I still haven't made my point - get yourself a hot doc. A hot public hospital doc. Trust me ... I'm a patient.


* intended as a joke**

** um, not really ...


END NOTE: If you haven't already, you simply must listen to one of the sexiest songs of all time - 'Wild is the Wind' sung by Nina Simone. I would be on the verandah at Hargreaves (my family's old place on the river), swinging to this song, bending to Nina's voice as it snaked out of those big B&O penters. It's a song that wraps around you; like a mood that passes through you. Drench yourself in it on a windy day on the apex of the bike track on Nadine Street, Graceville. If that doesn't get you tingling, you're as good as dead.

'You touch me,
I hear the sound of mandolins.
You kiss me.
With your kiss my life begins.
You're spring to me.
All things to me.
Hmmm, don't you know you're life itself?'

Tuesday, October 14, 2008

Books & Crushes

Here is an updated list of books I have on the go right now ---

'Aria' by Sarah Holland-Batt (She won the coveted Thomas Shapcott Prize for Poetry). I remember going to one of the shittest masterclasses I've ever been to - wait, let me re-phrase that, it was the shittest masterclass I've ever been to, and one of her pieces way back then was pretty fucking good.

'The Boat' by Nam Le

'Gilead' by Marilynne Robinson (for the second time)

'The Complete Western Stories' by Elmore Leonard

'The Best Australian Stories 2007' edited by Robert Drew

'The Guernsey Literary & Potato Peel Pie Society' by Mary Ann Shaffer, who so sadly died before the joy of this book swept across the world. Everyone has fallen in love with it, and to think Mary Ann would have had so many other stories to tell.

On an endnote, I'm still trudging through 'The Great War', and yes, it's still brilliant. Les Carlyon is my historical non-fiction guru, which gets me thinking about crushes. Here are my current crushes --

Intellectual crush - Andrew Denton

Medical crush - Dr. Charlie Teo

Political crush - Malcolm Turnbull

Girl crush - Sarah Palin - joking! I do not find her sexy in any way, even when she has a firearm. Although, I have to say that she does look more alluring with an AK-47because there's a fair chance that she might actually blow her own head off. So, my girl crush is reserved for Carla Bruni. I've been an avid listener to her music for a while, and find it intriguing that she is now the First Lady of France. C'est le bon!

Saturday, October 11, 2008

Papa's Got a Brand New Bag


Well, not exactly ... I am going to buy myself a new wallet, though not for reasons listed in my previous post (lost wallet). Happily, I have received the good news (actually better than good - more like fucking awesome) from the Sofitel saying that they have my wallet - quadruple yay!

In an effort to curb my 'losing shit when I drink' tendencies (it happens about thrice a year - getting drunk, not losing stuff), I'm thinking of going for something decadent and elegant. A beautiful fashion forward piece like this (nausea-vomitus) --------------------->

C.F Luncheon







Yesterday I went to my seventeenth Cystic Fibrosis luncheon. Of course this is a cause close to my heart, but yesterday was a rabid tangle of ironies. My mate Dan and I glammed up, frocked up and proceeded to get just a little hammered - not unusual for a luncheon. But there was a different vibe yesterday, as none of my other C.F luncheon centric friends could be there for varying reasons - work, weddings and the like.

I remember last year's luncheon quite vividly, even though I was off my face on oxycontin. It was just before the cuntostomy, and looking at photos from then to now I'm finding it hard to swallow that a year has gone, and here I am. Until I had a few drinks under my belt (actually, it was a bodysuit), I couldn't help but feel as though something was missing. That something was a 'someone', but not just any 'someone'. My Mum Jewel pioneered the C.F Luncheon's and the C.F Gala Balls, and the day felt a little empty without her there. It also sucked because I couldn't say how proud I was of her, and how in the midst of illness, death and raising a family, for some reason she was able to rise, creating something that is truly great - a legacy of sorts. A spate of migraines will slow anyone down, even someone as tough as my Mum, but there is always next year. I think Dad felt a little lost without her, too.

Yesterday was Dan's maiden luncheon (luncheon virgin, no more) and we had a super day and evening (until I lost my wallet - oh, the horror). A friend met me at the Sofitel after work, and by the time he arrived I had pretty much sobered up and entered premature hangover territory. We talked for a while, then went on the hunt for food, ending up at Oriental Corner (which is where I've lost my wallet me thinks), chomping down noodles. After being lulled into a false sense of hunger, my appetite waned after a few gobfuls.

I totally dig the photos Dan and I took yesterday, because apart from feeling like I'm in a really good headspace right now, you don't have to look too closely to see that everything seems to be clicking into place - my health, my writing and other miscellany. The photos are also a timely reminder of how lucky I am to be tripping the light Dantastic. Everyone should have a Dan, so I both encourage and wish you luck, because he's the real deal and the world needs more of them. Oh, and that big white box above this where there should be an image? It's a link to the Kathleen Noonan story from last Saturday's Courier Mail.

Saturday, October 4, 2008

I always fancied myself as a page 3 girl, but 36 is the new 3 (or so it seems)

If you haven't already, make sure you pick up a copy of Saturday's Courier Mail (that's today, tigers). Kathleen Noonan has written a kick-arse feature in her column 'The Last Word', which can be found on the back of the ETC (arts) section. Page thirty-six to be exact. You can also check it out here if you copy and paste the URL -

http://www.news.com.au/couriermail/story/0,23739,24464579-5012506,00.html

It should be posted either tomorrow or Monday. If in doubt, Google 'Kathleen Noonan' and there will be a link to her column where the story should pop up. I read her column every week, and there is one that still rattles in my head. It's about a cop who has seen both the best and worst of humanity. Simply put, Kathleen fucking nails it. And not just on the odd occasion - she nails it. Let me rephrase that - she nails it EVERY FUCKING WEEK.

This week has been a gravitron of emotion, particularly for my Mum, Jewel (who really is a jewel). From revisiting photos of my transplant to interviewing and subsequent writing for 'the book' (which is coming together at a rate of knots), it's been a little topsy-turvy. It is one thing to 'look' at the photos of my journey in 1998, but it's rough territory when you sit down and digest them, and then hear untold stories about what was going on while I was sleeping (I believe the correct medical term is 'induced coma').

Learning new things ten years post-transplant is like biting into a strange piece of fruit. It's a mood that passes through you and I cannot help but marvel at how lucky one person (et moi) can be to hear these intimate anecdotes from family and friends and doctors (now peppered across the country and indeed the world), who were here at the time, sharing the journey. In between the layers of these stories, there are private moments that no one will ever know about and I think it's a good thing to have something to lock away that is just yours. It's another layer, and even if people or circumstance chip, chip and chip away the way you would hack into the heart of an onion, it's going to sting and they'll never get to it anyway.

Despite my ardent agnosticism, there's an element of truth (sense and sensibility?) in the following Beatitude - 'blessed are the meek, for they shall inherit the earth'. I'm not sure about the earth, but I did inherit lungs and for that, I am humbled, and not just in a 'thank-you' kind of way. It's a 'I'm on anti-coags kneeling on broken glass and will walk across hot coals to show you my level of gratitude' way of thanksgiving.

I could write a thousand pages about the selflessness of my donor family, but often when something of such power and consequence has you in it's fist, it is the simple things that have the most meaning and pack the greatest punch. Like getting busy with life. You should try it.